Program Spotlight

The Washington State Newborn Screening (NBS) program has performed millions of tests to identify babies with rare congenital conditions since 1963. We have experienced many successes through this statewide program, finding these conditions early and treating them quickly.

This page showcases experiences of parents and caregivers in our program and healthcare providers who help us save lives by getting specimens to our lab in a timely manner. Thank you for everything you do to help keep our youngest residents in Washington healthy and happy!

Caregiver Spotlight

Each year we test specimens from more than 80,000 newborns. In this family spotlight, we highlight the story of two families who used our NBS program for their babies. These videos tell the stories of Susan and Indie Mays and Lisa Greene.

Susan and Indie

 

Indie Mays' story about living with Maple Syrup Urine Disease (MSUD)

Indie Mays was diagnosed with maple syrup urine disease (MSUD), a condition where her body cannot process certain amino acids and requires a strict low-protein diet. Susan, Indie’s mother, shares the importance of the second screening. It was the second test that led Indie’s doctor to diagnosis her and provide her with early intervention and treatment.

Lisa

Lisa Greene's story about living with cystic fibrosis (CF)

In Lisa Greene’s story we hear about her children’s diagnosis with cystic fibrosis (CF). Lisa’s children were born before CF was added to the Washington State NBS screening panel in 2006. Lisa wishes she could have found out sooner to help with treatment planning.

Health Care Professionals Spotlight

Our health care professionals, including hospitals, birth centers, clinics, and midwives, do an excellent job on their transit and collection times for specimen cards. Quick transit and collection are critical for early detection and treatment as some disorders can be life threatening within the baby’s first week of life. In this provider spotlight, we recognize the important work these health care professionals do for the NBS program.

Top Submitters for Compliance

Birthing facilities and birth attendants must collect initial specimens no later than 48 hours following a baby’s birth. Our state laboratory should receive these specimens within 72 hours of collection, excluding days that the laboratory is closed (Sundays and Thanksgiving).

In Washington, our goal is that all facilities and birth attendants  have a 100% rate for both on time initial screen and on time transit. Below are the birthing facilities that have the highest rates for on time initial screen and on time transit for this quarter.

Top Submitters for Compliance

Submitter ID

Facility Name

City

Eligible Infants

*On Time Initial Screen %

**On Time Transit %

Submitter ID

H0035

Facility Name

St. Elizabeth Hospital

City

Enumclaw

Eligible Infants

85

*On Time Initial Screen %

100.00%

**On Time Transit %

100.00%

Submitter ID

H0211

Facility Name

Swedish – Issaquah

City

Issaquah

Eligible Infants

449

*On Time Initial Screen %

100.00%

**On Time Transit %

97.33%

Submitter ID

H0130

Facility Name

UW Medical Center – Northwest

City

Seattle

Eligible Infants

488

*On Time Initial Screen %

99.80%

**On Time Transit %

100.00%

Submitter ID

H0202

Facility Name

St. Francis Hospital

City

Federal Way

Eligible Infants

363

*On Time Initial Screen %

99.72%

**On Time Transit %

99.17%

Submitter ID

H0058

Facility Name

Yakima Memorial Hospital – MultiCare

City

Yakima

Eligible Infants

596

*On Time Initial Screen %

99.66%

**On Time Transit %

97.82%

Submitter ID

H0081

Facility Name

Good Samaritan Hospital – MultiCare

City

Puyallup

Eligible Infants

553

*On Time Initial Screen %

99.64%

**On Time Transit %

99.28%

Submitter ID

H0131

Facility Name

Overlake Medical Center

City

Bellevue

Eligible Infants

884

*On Time Initial Screen %

99.55%

**On Time Transit %

97.74%

Submitter ID

H0159

Facility Name

Providence St. Peter Hospital

City

Olympia

Eligible Infants

462

*On Time Initial Screen %

99.35%

**On Time Transit %

97.62%

Submitter ID

H0164

Facility Name

Evergreen Health Kirkland

City

Kirkland

Eligible Infants

1,118

*On Time Initial Screen %

99.28%

**On Time Transit %

99.02%

Submitter ID

H0001

Facility Name

Swedish – First Hill

City

Seattle

Eligible Infants

1,678

*On Time Initial Screen %

99.17%

**On Time Transit %

98.51%

Submitter ID

H0142

Facility Name

St. Michael Medical Center

City

Silverdale

Eligible Infants

445

*On Time Initial Screen %

99.10%

**On Time Transit %

98.88%

Submitter ID

H0032

Facility Name

St. Joseph Medical Center – Tacoma

City

Tacoma

Eligible Infants

994

*On Time Initial Screen %

98.79%

**On Time Transit %

97.48%

(Data from 2024 Quarter 1)

*Specimen Collection: Initial specimens are collected no later than 48 hours following birth.

**Transit Performance: Initial specimens must be received by State Laboratory within 72 hours of collection (excluding days that the laboratory is closed – Sundays and Thanksgiving.)

Top Submitters for Quality

Healthcare providers must obtain specimens with proper collection, drying, and transportation methods. Additionally, providers must fill out the card demographics with accurate information. Inaccurate data or improperly collected specimens (unsatisfactory specimens) can cause delayed diagnosis and treatment.

In Washington, our aim is that all providers have a 0% error rate for both demographic information and unsatisfactory specimens. Below are the providers that have the lowest rates for demographic and unsatisfactory errors for this quarter.

Top Submitters for Quality

Submitter ID

Facility Name

City

Total Specimens

*Demographic Error %

**Unsatisfactory  Error %

Submitter ID

C1275

Facility Name

Confluence Moses Lake Clinic

City

Moses Lake

Total Specimens

69

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C1284

Facility Name

FCN – North Sound Family Medicine

City

Bellingham

Total Specimens

15

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C1500

Facility Name

FCN – Family Health Associates

City

Bellingham

Total Specimens

18

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C1615

Facility Name

Fairchild Laboratory

City

Fairchild AFB

Total Specimens

28

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C1868

Facility Name

Mercer Island Pediatric Associates

City

Mercer Island

Total Specimens

52

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C1969

Facility Name

Creekside Medical

City

Vancouver

Total Specimens

13

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C2084

Facility Name

Northwest Pediatric Center – Rochester

City

Centralia

Total Specimens

11

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

C2275

Facility Name

Carl Berliner’s Office

City

Mount Vernon

Total Specimens

11

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

H0022

Facility Name

Lourdes Medical Center

City

Pasco

Total Specimens

19

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

H0153

Facility Name

Whitman Hospital and Medical Center

City

Colfax

Total Specimens

22

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

H0701

Facility Name

Naval Hospital – Oak Harbor

City

Oak Harbor

Total Specimens

12

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

M0575

Facility Name

Dawn Wadleigh, LM

City

Tacoma

Total Specimens

17

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

Submitter ID

M0743

Facility Name

Christine Tindal, LM CPM MSM

City

Burien

Total Specimens

11

*Demographic Error %

0.00%

**Unsatisfactory  Error %

0.00%

(Data from 2024 Quarter 1)

*Demographic error: Key demographic fields are necessary for interpreting newborn screening results and for identifying the infant. Specimens with invalid or missing demographic information could delay diagnosis and treatment of an affected infant.

**Unsatisfactory specimen error: Some specimens are considered unsatisfactory due to the quality of specimen collection or handling. In these cases, another specimen must be obtained to complete screening, which could delay diagnosis and treatment of an affected infant or cause undue hardship for the parents.

Data from previous quarters is available on the Washington Tracking Network website.