Information and Resources on Children and Youth with Special Health Care Needs

Family Information
 

 


 

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Care Notebook: A Quick Guide (PDF)

A Care Notebook is an organizing tool for families who have children with special health care needs. Use a Care Notebook to keep track of important information about your child’s health and care.

 


 

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Children and Youth with Special Healthcare Needs Care Coordination Toolkit document thumbnail

Children and Youth and Special Healthcare Needs Care Coordination Toolkit (PDF)

The CYSHCN Care Coordination Toolkit section provides the full toolkit along with additional resources to support families and providers in coordinating care. It’s a one-stop hub for practical tools and guidance.

 


 

 


 

 


 

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Strong and Growing: A Health Care Transition Guide for Young People with Chronic Health Conditions (PDF)

You are the expert on your own health. You live every day with a chronic health condition or disability. This guide is here to help you be you healthiest self.

Additional Languages

 


 

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Planning for a Healthy Transition: A Family Transition Plan (PDF)

This brochure helps parents begin things about health care transition and supports them in guiding their child to create a successful transition plan.

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Visitation Communication Tool (PDF)

This form is used to help share important information about how providers can support children and youth with special health care needs when receiving care.

 


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Nutrition

Empowering Culinary Exploration course

Tips for Teaching Cooking Skills to Youth with Disabilities

It's not unusual to locate a culinary class in a grocery store, health facility, YMCA, or higher education opportunities. There is ample research on the impact of culinary instruction and positive health outcomes for individuals with disabilities, but little on program design or skill-set development. Creating a culinary program that promotes health and independence using the active engagement model is key! This virtual training module is for any new educator, support staff or caregivers who would like to advance cooking skills for individuals with intellectual developmental delay, cognitive and/or motor impairment.

   Start the Empowering Culinary Exploration course

Additional nutrition resources

Health