For families who have received a pre- or postnatal diagnosis of Down Syndrome.
Local Resources for Families
A list of statewide support programs and regional support networks: Local Resources for Families who have a member with Down syndrome (PDF)
Understanding Down Syndrome Diagnosis
Lettercase, part of the National Center for Prenatal and Postnatal Resources at the University of Kentucky, offers a free booklet titled Understanding a Down Syndrome Diagnosis.
This booklet is available in English, Korean, Chinese, Japanese, Vietnamese, Somali, Russian, and Spanish.
Request your free copy of Understanding a Down Syndrome Diagnosis:
Health and Medical Resources
- Medline Plus: Down syndrome
General information about Down Syndrome - American Academy of Pediatrics (AAP) Guide
Support for families - Dental Health for Children with Down Syndrome
Tips for parents and caregivers - Dental Care Guide for Families
Available in English and Spanish
Breastfeeding and Chestfeeding Support
- Julia's Way: Breastfeeding and Down Syndrome
Encouraging parents of children with Down syndrome to breast or chestfeed their babies. It also has educational materials for medical professionals on how to support parents breastfeed and chestfeeding babies with Down Syndrome.
Sleep and Memory Support
- Down syndrome and Sleep
Sleep management tips - Down Syndrome & Memory Loss
Support through the Alzheimer Association—Washington State Chapter for caregivers caring for an individual with symptoms of memory loss.
Educational and School Resources
- National Down Syndrome Society
Printable resources to help families prepare for school.
Genetic and Prenatal Services
- Genetic and Rare Diseases Information Center (GARD)
While Down syndrome is not a rare disease, GARD provides information if genetics play a role in the condition. - Prenatal Genetic Services
Learn about genetic testing and support during pregnancy. - Find a Regional Genetics Clinic
Locate a provider closest to you
Legal and Advocacy
- Down Syndrome Information Act (PDF)
A law that ensures families receiving pre- or postnatal Down Syndrome diagnosis get accurate information from their health care providers.