Information For Parents Who Have Received a Pre- or Postnatal Diagnosis of Down Syndrome
Lettercase, housed in the National Center for Prenatal and Postnatal Resources at the University of Kentucky, has prepared a booklet entitled “Understanding a Down Syndrome Diagnosis.” This booklet is both in Spanish and English. You can request a copy for free through Lettercase (http://lettercase.org/get-the-booklet/) or by emailing us at firstname.lastname@example.org. This booklet is also available in Korean, Chinese, Japanese, Vietnamese, Somali, Russian, and Spanish at this link: http://understandingdownsyndrome.org/
- Local Resources for Families who have a member with Down syndrome (PDF)
A list of statewide support programs and regional support networks.
- Julia's Way - Breastfeeding and Down Syndrome
This is a resource that focuses on inspiring and encouraging mothers of children with Down syndrome to breastfeed their babies as well as educating medical professionals on how to support mothers to help their babies breastfeed successfully.
- Oral Health Fact Sheet for Dental Professionals: Adults with Down syndrome (Trisomy 21)
This publication for dental professionals outlines best practices for working with adults who are diagnosed with Down syndrome (Trisomy 21).
- Dental Health Guidance for Parents and Caregivers of Children with Down Syndrome (Trisomy 21)
This publication for parents and care givers outlines best practices for working with children who are diagnosed with Down Syndrome (Trisomy 21).
- Down Syndrome & Dental Care - A Guide for Caregivers and Family Members
This resource provides Dental Care Guidance for Caregivers of Patients with Down Syndrome. Available in English and Spanish.
- Down syndrome & Memory Loss
This is a Support Group for caregivers caring for an individual with Down syndrome who exhibits symptoms of memory loss.
- Down syndrome and Sleep
This resource provides sleep management tips for individuals with Down syndrome.
- Additional Down syndrome resource materials for medical professionals and new families (PDF)
- Genetics education materials for school success
How to support children with Down syndrome.
- Guide developed by the American Academy of Pediatrics (AAP) to help parents and families of children with Down syndrome
- More information on Down syndrome from the Genetic and Rare Diseases Information Center (GARD)
While Down syndrome is not a rare disease, GARD includes diseases if genetics plays a role in the condition.
Interested in Prenatal Genetic Services?